Helping Kids Understand Alzheimer’s Disease

The National Institute on Aging’s ADEAR Center offered this advice.  When a family member has Alzheimer’s disease, it affects everyone in the family, including children and grandchildren. It’s important to talk to them about what is happening. How much and what kind of information you share depends on the child’s age and relationship to the person with Alzheimer’s.

Helping Kids Cope

Here are some tips to help kids understand what is happening:

  • Answer their questions simply and honestly. For example, you might tell a young child, “Grandma has an illness that makes it hard for her to remember things.”
  • Help them know that their feelings of sadness and anger are normal.
  • Comfort them. Tell them no one caused the disease. Young children may think they did something to hurt their grandparents.

Talk with kids about their concerns and feelings. Some may not talk about their negative feelings, but you may see changes in how they act. Problems at school, with friends, or at home can be a sign that they are upset. A school counselor or social worker can help your child understand what is happening and learn how to cope.

A teenager might find it hard to accept how the person with Alzheimer’s has changed. He or she may find the changes upsetting or embarrassing and not want to be around the person. Don’t force them to spend time with the person who has Alzheimer’s. This could make things worse.

Give children information about Alzheimer’s that they can understand. For Alzheimer’s books and other materials, visit Resources for Children and Teens About Alzheimer’s Disease.

Spending Time Together and Alone

It’s important to show kids that they can still talk with the person with Alzheimer’s disease and help him or her enjoy activities. Many younger children will look to you to see how to act.

Doing fun things together can help both the child and the person with Alzheimer’s. Here are some things they might do:

  • Do simple arts and crafts
  • Play music or sing
  • Look through photo albums
  • Read stories out loud

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